Yes, hidradenitis suppurativa can smell, and it happens for a reason that has nothing to do with how clean you are. The odor comes from lesions that are draining: the fluid itself, and the bacteria that live inside HS nodules and tunnels, produce the smell. Skin without active drainage usually has no HS smell at all. That distinction matters, because the fear of smelling is one of the heaviest parts of this disease, and most of what people quietly assume about it, that it means poor hygiene, that everyone can tell, that nothing can be done, is wrong. Here is what actually causes it, what helps, and what I did during the years my own lesions drained.
Why does hidradenitis suppurativa smell?
Two things create the odor: what is in the drainage, and who lives in the lesion.
When an HS nodule or abscess opens, it releases pus, which is a mix of immune cells, broken-down tissue, fluid and bacteria. A 2024 review of HS essentials lists foul-smelling discharge among the recognized symptoms of the disease, alongside pain and drainage, and notes how much distress it causes.
The second part is the microbiology. HS tunnels, the tracts that form under the skin in longstanding disease, are a low-oxygen environment where keratin and debris accumulate. A 2025 systematic review of the microbiome in HS tunnels, covering eight studies and 418 patients, found them consistently dominated by anaerobic bacteria, above all Prevotella, Porphyromonas and Fusobacterium. Anaerobes are microbes that thrive without oxygen, and the review points to exactly this environment, trapped keratin plus anaerobic overgrowth, as a driver of suppuration and malodor. If you have ever wondered why the smell of a draining lesion is so distinctive, this is the answer: it is largely the chemistry of anaerobic bacteria.
What the smell is not: a hygiene report card. The NHS page on hidradenitis suppurativa states plainly that the condition is not infectious and is not linked to poor hygiene. You did not cause the odor by washing too little, and you cannot scrub it away, because it is produced inside the lesion, not on the surface.
Can other people actually smell it?
This is the real question behind the search, and the honest answer is: far less often than you fear, and almost only when a lesion is actively draining.
Between flares, or when lesions are closed, there is usually nothing to smell. During a drainage episode, the odor is real, but it is mostly trapped close to the skin, under clothes and dressings. What reaches other people is a fraction of what reaches you, because you are the closest person to it and the one checking for it. Anyone who has lived with HS knows the constant self-monitoring: the discreet check in the bathroom, the fear in a warm meeting room. That vigilance is exhausting, and it also means you will notice a drainage event long before anyone else could.
A sudden, stronger smell has a practical meaning: it usually tells you a lesion has opened and the dressing needs changing. Treating it as information, rather than as a verdict on you, is one of the small mental shifts that make this disease easier to carry.
What actually helps reduce the smell?
Nothing on this list treats the disease itself, and none of it is a moral duty. These are damage-control tactics for drainage days, in rough order of how much difference they make.
An antiseptic wash routine
Because the odor is bacterial, reducing the bacterial load on the skin helps. The NHS notes that antiseptic washes, such as 4% chlorhexidine applied daily to affected areas, are often prescribed alongside other treatments. The American Academy of Dermatology's self-care guidance similarly suggests an antimicrobial wash, naming benzoyl peroxide and zinc pyrithione as options, and expert reviews describe chlorhexidine and similar cleansers as supported by professional opinion rather than strong trials. In plain terms: dermatologists commonly recommend these washes, the evidence base is thin but the rationale is sound, and your own dermatologist can tell you which fits your skin.
One caution from the same AAD guidance: wash gently. Aggressive scrubbing inflames the skin and can make HS worse. The goal is a mild antiseptic routine, not punishment.
Absorbent dressings, changed before they saturate
A sealed, absorbent dressing does two jobs at once: it protects the skin and it contains the odor. The dressings that actually get used for HS are humble, according to survey data summarized in the 2024 review: dermatologists most often recommend abdominal pads, plain gauze, and panty liners or menstrual pads. The single most effective anti-smell habit on a drainage day is changing the dressing before it soaks through, because a saturated pad against warm skin is where the odor escapes. I wrote a full guide to bandages and dressings for HS, including how to handle a leak at work.
Clothes that breathe, changed often
Drainage that reaches fabric stays with the fabric, so on active days the shirt or underwear near a lesion is working as a second dressing whether you want it to or not. Loose, breathable clothing is part of the AAD's standard self-care advice because friction and trapped heat aggravate lesions; it also happens to let air move, which keeps any odor from concentrating. Fresh clothes and clean towels around an open lesion are basic wound hygiene as much as smell control. Wash things promptly rather than letting them sit, and let them dry fully.
Deodorant, chosen carefully
Deodorant will not fix a draining lesion, but armpit HS and deodorant have a complicated relationship: the AAD advises avoiding products with alcohol, baking soda, parabens, dyes or fragrance, because they irritate exactly the skin you are trying to protect. I wrote up how to choose one, and what the ingredient labels actually mean for HS skin, in my guide to deodorant for hidradenitis suppurativa.
Treating the disease, not just the smell
Everything above manages the symptom. The odor ultimately tracks the drainage, so anything that reduces flares reduces the smell with it. That conversation belongs with a dermatologist, and there are real options in it: the 2024 review describes topical clindamycin as the most commonly used topical antibiotic for milder HS, and antibiotics in general as tools that lower bacterial load and inflammation. That is reporting, not a suggestion to start anything on your own; which treatment fits your stage and your history is exactly what a dermatologist is for.
When is a smell a warning sign?
The background odor of a draining lesion is unpleasant but familiar. What deserves attention is change. According to the NHS, HS lumps can become infected with bacteria, and an infection needs medical treatment. If a new or much stronger smell arrives together with fever, spreading redness, skin that is hot to the touch, or pain that escalates quickly, that combination is a reason to contact a doctor promptly rather than to add more dressing and wait. Trust your baseline: you know what your normal is better than anyone.
What did I do about it, in my worst years?
I had years when my HS was at its worst, and after surgery on several of my cysts and abscesses I lived with packed wounds that had to be redressed every single day, with another person's help. So the fear behind this question is not abstract to me. One of those dressings sat where everyone could see it, and I hid it under my beard. The checking, the awareness of my own body in a room, never really switched off in those years.
What I can tell you from that time is that the boring routine was what held: gauze and absorbent pads changed as soon as they were wet, clean clothes and clean towels around anything open, gentle washing instead of scrubbing skin that was already inflamed. None of it was dignified in the moment, and all of it gave me dignity back, because it meant the smell stayed a private logistics problem instead of a public one.
The deeper change came later and more slowly. HS has no cure, and I am careful with that sentence, but my flares and drainage faded as I worked on my overall health, in my case through an elimination and reintroduction approach in the AIP tradition that eventually got me to remission. Less drainage meant the smell simply stopped being part of my life. That journey, with everything I tried and everything I would do differently, is the story I tell in my book. For your own version of it, start with a dermatologist who knows HS; this piece is my experience plus the published evidence, not medical advice for your case.
FAQ
Does a smell mean my HS is infected?
Not by itself. Research on HS tunnels shows anaerobic bacteria are routinely present in the lesions themselves, so some odor with drainage is expected. The NHS notes lumps can additionally become infected: a marked change in smell together with fever, spreading redness or rapidly worsening pain is the pattern that warrants a prompt call to a doctor.
Does everyone with HS have an odor?
No. The smell comes from active drainage. People whose lesions are closed, in mild stages or in remission typically have no HS-related odor at all.
Do antiseptic washes actually work?
They are commonly recommended: the NHS mentions 4% chlorhexidine washes as often prescribed, and the AAD suggests benzoyl peroxide or zinc pyrithione washes. The supporting evidence is expert opinion more than large trials, and they manage bacteria rather than treating HS itself, so treat them as one tool and ask your dermatologist which suits your skin.
How do I get the smell out of clothes?
Change clothes that have absorbed drainage as soon as you practically can, wash them promptly instead of letting them sit, and dry them completely; a well-covered lesion, with the dressing changed before it saturates, keeps most of the odor out of fabric in the first place.
Sources
- Soto-Moreno A. et al., The Microbiome in Hidradenitis Suppurativa Tunnels: A Systematic Review, International Journal of Dermatology, 2025 (PMC)
- Pandey A., Essentials of hidradenitis suppurativa: a comprehensive review of diagnostic and treatment perspectives, Annals of Medicine and Surgery, 2024 (PMC)
- NHS, Hidradenitis suppurativa, health condition page
- American Academy of Dermatology, Hidradenitis suppurativa: self-care
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